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James Allingham
Story
Hi there!
The Mission Massimo Foundation is a non-profit organisation that promotes the prevention, diagnosis and treatment of childhood Leukodystrophies. These are a group of life-threatening genetic conditions that affect the formation of myelin, a complex fatty substance that acts as an insulator around nerve fibres in the brain. Unfortunately, more than 50% of leukodystrophies remain genetically unclassified offering families little hope of treatment and a usually tragic outcome. Whilst individually rare, collectively these disorders are not altogether uncommon and affect up to 1 in 3,000 births yet their existence remains almost unknown. The Mission Massimo Foundation works to accelerate the discovery of the genetic causes for these disorders and translate research into clinical treatments.
I've created this Melbourne Marathon 2017 fundraising page because I want to raise vital funds for local research and make a real difference. Please help me by giving whatever you can using the 'Give Now' button. The more people that know about my efforts in the Melbourne Marathon 2017, the greater the impact, so please also spread the word by sharing our page with your friends and family.
Thank you in advance for your generosity and support - it means a lot!
Mission Massimo Foundation
The Mission Massimo Foundation is a non-profit organisation that promotes the prevention, diagnosis and treatment of childhood Leukodystrophies. These are a group of life-threatening genetic conditions that affect the formation of myelin, a complex fatty substance that acts as an insulator around nerve fibres in the brain much like electrical wiring. Unfortunately, more then 50% of childhood Leukodystrophies remain genetically unclassified offering families little hope of treatment and a usually tragic outcome. Whilst individually rare, these disorders are not altogether uncommon. In fact they may affect up to 1 in 3,000 births yet their existence remains almost unknown. Our mission is to accelerate the discovery of genetic variations responsible for these disorders and to translate these finding into clinical treatments.