Online Fundraising

JOIN OUR MISSION

TO END CHILDHOOD LEUKODYSTROPHIES

MELBOURNE MARATHON 2017

If you started the year with a goal of running a signature 3km, 5km, 10km, Half Marathon or Marathon event this is your opportunity to support a great cause and help change the economics of rare disease. Tighten those flight boots and get ready to make a difference for Mission Massimo Foundation. Whether you’re in it for a fun day out, or to achieve a personal best, make every step count by fundraising as part of your run.

 

MISSION MASSIMO FOUNDATION

The Mission Massimo Foundation is a non-profit organisation that promotes the prevention, diagnosis and treatment of childhood Leukodystrophies. Leukodystrophies are a group of life-threatening genetic conditions that affect the formation of myelin, a complex fatty substance that acts as an insulator around nerve fibres in the brain. Unfortunately, more than 50% of Leukodystrophies remain genetically unclassified offering families little hope of treatment and a usually tragic outcome. Whilst individually rare, collectively these disorders are not altogether uncommon and may affect up to 1 in 3,000 births yet their existence remains almost unknown. Our mission is to accelerate the discovery of genetic causes for these disorders and to translate these into clinical treatments.

 

YOUR MISSION - YOUR IMPACT

Last year we partnered with Melbourne Marathon for a hugely successful public awareness and fundraising campaign to support researchers at The University of Queensland - Australian Institute for Bioengineering and Nanotechnology in generating four patient derived stem cell lines. Thanks to your commitment and generosity these stem cell lines are now being used to model a Leukodystrophy.

 

In 2018 we want to take the next giant leap forward in the clinical translation of research into these debilitating conditions with Project GENESIS, utilising cutting edge CRISPR technology to edit the DNA of these patient derived stem cell lines. With your support, the research team will attempt to correct damaging genetic variations to derive neural cells that may one day be implanted back into patients without the risk of rejection. It's science fiction today, but not for long with your support.
 

MISSION MASSIMO RUNNING CREW BENEFITS

You are the fuel that keeps our engines burning at the Mission Massimo Foundation. We rely solely on grass roots support to fund our vital medical research initiatives. We couldn’t do it without the help of dedicated fundraisers like you - every bit of effort counts and any amount you raise is so appreciated.

 

  - Running Crew Flight T-Shirt

 

  - Remove Before Flight Key Ring

 

  - Mission Water Bottle

 

  - 12 Week Professional Training Program

 

  - Signed Copy of Cracking the Code Book 

 

  > 12 Week Programs Commence Monday 24th July

 

SETUP FUNDRAISING PAGE

First, you need to setup your Fundraising Page by clicking on the Start Fundraising button above.

 

Share your page with family, friends and work colleagues.

 

EVENT REGISTRATION

Next, you need to Select Your Distance and Register for the Melbourne Marathon HERE.

 

Together we will make today's science fiction, tomorrow's science fact.

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